Jaime Jenkins, 23, and her boyfriend Jakob Lang live in Sydney, Australia. They have been together for a long time and were looking forward to the birth of their first child. But already at the 12th week of pregnancy, doctors warned parents that the fetus was developing with abnormalities. The frightened mother was at a loss. For a long time, Jamie and Jacob did not know what was wrong with their baby.
Only a few weeks remained until the happy day, when the doctors told the future parents the terrible news: their daughter’s lungs were underdeveloped. Experts were sure that the child would die immediately after birth, and suggested terminating the pregnancy. But the young mother refused. “I could feel her kicking,” Jamie recalls. We have already chosen a name for her. I just had to give her a chance at life.”
When Helena was born, her parents were ready to say goodbye to her. Doctors thought she had no chance of survival. But in spite of fate, the girl became stronger every day. Six weeks later, doctors finally made a diagnosis: Helena had pituitary dwarfism, a condition better known as dwarfism. The girl spent three months in the hospital, she was on the verge of death three times. During this time, young parents took a special course to learn how to take care of their daughter’s health.
Doctors have found that Jamie and Jacob both have a hereditary predisposition to dwarfism, and this despite the fact that they are both tall – under 1.8 height. If a couple has another child, then the chance that he will also be affected by the disease is one in three.
But while the couple is not thinking about the next replenishment in the family, they devote all their time to their “inch” – as parents call Helena.
They often dress her up as a princess to make her smile and lift her spirits, as she still has to go through medical examinations and undergo unpleasant procedures all the time. Enjoying attention and love, Helena smiles happily in every photo.
Believe it or not, Helena, a one-year-old inch, has already become a model! After learning her story, children’s clothing manufacturers signed a contract with the family.
Parents understand that their daughter’s story can inspire many people around the world to fight serious illnesses. Therefore, the baby already has her own Facebook page. “Helena never ceases to amaze us,” says Jamie. “She’s just amazing. And we hope that her example will help other parents whose children also suffer from this disease.”
Every two weeks, Helena has to be examined at the hospital, but her parents make every effort to ensure that their daughter’s childhood was happy and cloudless no matter what. The girl has a hard life ahead of her. So I hope that it will be long and happy.
Helena’s story can help many people in a difficult situation to believe in themselves and not give up. Tell it to your friends.